To: Shona Robison MSP and Sajid Javid Home Secretary, Prime Minister Theresa May
Help my son Murray by making medicinal cannabis available on the NHS
Why is this important?
My 5 year old son has Doose Syndrome / Myoclonic Astatic Epilepsy (MAE). This is a rare form of epilepsy and means he lives with up to 600 seizures a DAY (4 different seizure types). He has spent months lying in a hospital bed shaking, now uses a wheelchair and has only been able to attend school for 3 weeks this year!
It is very hard to control with the medicine currently available and it has been proven in other countries that medical cannabis helps people with illnesses like his. In the USA medical cannabis has helped stop the daily aggressive seizures that children with this syndrome have. If medical cannabis was available on the NHS my son may have a chance of a normal life.
CBD oil is already available to buy in the UK. But right now it's impossible to get medical advice or a guide on what dosage is safe. The government needs to make this legally available so that the NHS can administer it safely and change the lives of people with illnesses that could be helped by it.